When you’re the parent of a special-needs child you become a warrior like no other.
You are the voice of the unheard, the defender of the fragile and an extension of another human being. You give yourself away and stand where most feel is impossible. Not just standing but also pushing on and persevering. You go without sleep with an often erratic diet and don’t even think about that thing called working out.
In the life of these warriors a day doesn’t go by in which they aren’t looking for that missing piece, that evasive clue to heal, cure and ease the struggles of the one they carried inside of them, and continue to carry and care for. Countless hospital visits, oxygen therapies, DAN protocols, out of pocket therapies and medications, brushing, sensory integration issues and massive meltdowns day after day doesn’t even begin to express the magnitude of the sacrifice and tireless love and dedication that is given by these warriors on a daily basis.
Never ending and never giving up.
There is nothing more rewarding than watching your child succeed in their own paths – even if it be slowly, on his or her own timetable which will certainly differ from their peers. These parents may feel sadness but they try to never let it show for they are the guides and those who reassure. One step at a time, one foot in front of the other we continue on while holding their hands, showing them the way.
The children will continue to push on and succeed like The Little Engine That Could because slow and steady does eventually win the race.
We persevere, being the rock for such a dependent soul praying one day they will leave the nest yet knowing deep down that day may never come. Your life has been forever changed in one of most challenging, demanding and ever so stressful ways. Yet it is invigorating, ultimately for the best, and a gift from the Almighty above.
We are the real mujahideen as this is all done in the way of Allah, to fulfill the trust He has given us.
These are the ones over looked, left out and so often neglected. These are the parents who sacrifice themselves on behalf of those who need them most.
Indeed actions are but by intentions and everyone is rewarded according to their intentions. Instead of seeing this as only a trial (or worse, like you are a victim) intend your efforts, your struggles, your sacrifices as a means of drawing nearer to Allah for indeed, all success is with Him alone.
Jamilah Breiannis entered Islam in 1996 and has since then received Official licenses (ijaazaat) in several classical Islamic texts. She has also studied in the fields of homeschooling, Unschooling and guerrilla learning styles. She has received various certifications in Childhood Development, Early Childhood Education, and Special Education. She has been certified in Dyslexia Therapy, Braille Literacy, Herbalism and Aromatherapy and these are skills she has used as she homeschooled nine children of her own, four of which have special needs. Jamilah also founded a charitable effort called the “Community Closet” which she still serves. She currently holds the position of Special Education Director for the “Muslim Learning Center” in Baltimore, Md. where she resides with her family.
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